Be your own advocate.  Be your child's advocate.  If not, all your worries are ignored and questions are left unanswered.

Four days after waiting for a neurosurgeon to dismiss my mother from the hospital - or to tell us if she needed surgery asap, the doc was no where to be found.  So we found ourselves sitting in the hospital needlessly while others needed care for two extra days.  Finally, I called the neurosurgeon's office and had him paged.  Boy, was my mother mad!  But if you are not your own advocate, who will be?!?

The same with Jaiden.  The first neurologist we visited was negative and very "we'll just have to see."  Not good enough.  Lie to me.  Cheat me.  Make me believe my daughter will be okay.  I need that.  I need positivity.  I need a "glass half full" type of person to help my daughter.  So, we switched neurologists and our new one, while lacking in people skills (with adults), is amazing with our daughter and very informative (while avoiding eye contact).  Amazing!

If no one will fight for you, YOU fight for you.  If no one will fight for your child, YOU fight for your child.  Life is too short to wonder "did we do enough?!"  Do enough.  Be the advocate!  It will make all the difference in the end.